Methodologies and Inequities: Participatory and Narrative Approaches to Research with Marginalized Communities

McKinley Green George Mason University ; Val Crutcher AIDS United ; Océane Lune AIDS United ; Munira Mutmainna George Mason University ; Raquelle Lenoir AIDS United ; Andrew Schuster AIDS United ; Gage Urvina AIDS United ; Calla Brown Youth Development

Abstract

In this commentary, we reflect on a study investigating how young people living with HIV navigated the COVID-19 pandemic and offer concrete methodological approaches to studying health inequity. We describe how participatory and narrative-based methods helped us develop five specific study protocols that reflected our commitments to equity in research: revising questions to account for local conditions of risk; intervening in histories of extractive research practices leveraged against communities at the margins; phrasing demographic questions to account for the complexity of identity; incorporating consent iteratively across the study; and offering incentives that were consistent with participants’ expertise of their own lived experiences. We use these reflections to further ongoing conversations about integrating equity into rhetorically inflected health research.

Journal
Rhetoric of Health and Medicine
Published
2024-05-15
DOI
10.5744/rhm.2024.2005
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Cited by in this index (1)

  1. Journal of Technical Writing and Communication

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