This paper reports on a user experience (UX) study investigating how college students navigate university-sponsored online systems for sharing chosen name and pronouns. While the opportunity to share gender identity ostensibly enables inclusive and usable systems for queer students, the visibility of gender nonconformity also imposes surveillance concerns, as pronouns have become an organizing tool for governments and university boards intent on limiting diversity, equity, and inclusion initiatives. Drawing from trans and queer scholarship, this article suggests that the concept of visibility should be closely scrutinized in design settings where heightened visibility can present risks to bodily autonomy or safety.

In this commentary, we reflect on a study investigating how young people living with HIV navigated the COVID-19 pandemic and offer concrete methodological approaches to studying health inequity. We describe how participatory and narrative-based methods helped us develop five specific study protocols that reflected our commitments to equity in research: revising questions to account for local conditions of risk; intervening in histories of extractive research practices leveraged against communities at the margins; phrasing demographic questions to account for the complexity of identity; incorporating consent iteratively across the study; and offering incentives that were consistent with participants’ expertise of their own lived experiences. We use these reflections to further ongoing conversations about integrating equity into rhetorically inflected health research.

Introduction to Queer and Trans Health Justice: A Special Issue of RHM

Reciprocity often forms the ideological core of community engagement, and discussions around reciprocity have encouraged researchers to pursue ethical and mutually beneficial collaborations with community partners. This article suggests that current conversations around reciprocity often presume a tacit level of difference between researchers and communities that they partner with, and that this unstated premise of difference obscures practices of reciprocity that emerge when academics and communities share similar identities or social locations. This article highlights two forms of reciprocity—deprioritizing academic outcomes and relational sustainability—that emerge when researchers work with their home communities or when their positionalities overlap. Attending more closely to similarity and positionality can add complexity to current vocabulary around community-based research and give language to the reciprocal practices that emerge when academics work with communities they are a part of.

This article proposes resistance as a form of participation in user experience settings. It details a study to include people living with HIV in codesigning a health education technology, and it found that participants resisted online education initiatives, citing HIV stigma on social media and privacy concerns. Taken with queer theory, these findings underscore the offline inequities mediating interaction on social media for those living with HIV and open alternative design arrangements reflecting participants’ embodied experiences.

Using narrative-based user experience methods, this article investigates how youth living with HIV discuss their serostatus on the dating app Grindr. This study found that participants resisted Grindr’s interface, which encourages users to disclose their HIV status. Using intersectional queer theories of unruliness, this article argues that these resistant user experiences destabilize the underlying ideological aims of Grindr’s risk-reduction strategies, revealing ulterior practices of risk and safety stemming from the embodied realities of living with HIV.