This article argues that the field of rhetoric of health and medicine (RHM) needs queer and (trans)formative methodologies to support a disempowered, ignored, and devalued queer community. Building directly from Mohan J. Dutta’s (2022) work, the article 1) addresses that RHM scholarly practices attend to whiteness and neglect to amplify queer and transgender interventional and rhetorical approaches; 2) develops a methodology–institutional critique–for RHM practitioners that crosses disciplinary boundaries to showcase cistematic oppression at infrastructural, structural, institutional, and interpersonal levels; and 3) provides a personal medical story that showcases how institutions fail transgender and queer patients. Through this work, this article argues for the need for rhetorical methodological intervention in RHM research and to mobilize transgender rhetorical agency through coalitional building.

This dialogue offers a transnational perspective on the emergence of public health officials (PHOs) as celebrities during the acute phase of the COVID-19 pandemic. Drawing on scholarship on public health rhetorics (e.g., Keränen, 2014; Malkowski & Melonçon, 2019) and on our experiences of living through the ongoing pandemic as well as observing its effects in Australia, Canada, China, and the United States, we focused our discussion on our local contexts; key public health celebrities who emerged in those contexts; changes in public reaction to those figures over time; and why the celebrification of public health figures is of interest to scholars in rhetoric of health and medicine. We close by reflecting on how our transnational discussion of public health celebrities has reshaped our understanding of celebrification in health and outline key areas of future collaboration and inquiry.

Scholars from a wide range of disciplines, including communication and rhetoric, have argued that infectious disease has been increasingly securitized in the post-9/11 environment. This essay tracks the rhetoric of seven U.S. pandemic plans from 1978 to 2017 to investigate how the evolving language of these plans supports or undermines the infectious disease securitization thesis. Our analysis reveals stark differences in the arrangement, delivery, and style of U.S. pandemic plans, despite a consistent focus on antigenic shifts of influenza A, vaccines, and medical research and development. Although U.S. pandemic plans reflect connections to security since their earliest inception, they have adopted more explicit linkages to national and global health security since 2005. This move reflects the emergence of the global health security paradigm and raises questions about pandemic planning implementation.

Celebrity-driven wellness ventures are pervasive and often spearheaded by white women, resulting in white-centric health guidance. One such venture is KINRGY, a workout and lifestyle method created by professional dancer Julianne Hough that regularly appropriates and exploits Eastern, Aboriginal, and BIPOC cultural practices. Through a critical rhetorical interrogation of the workout videos and Instagram feed of KINRGY, we assess how this method relies on cultural appropriation and New Age Orientalism to situate spirituality as the crux of universal health, thus establishing a reconfiguration of healthism into what we call “neohealthism”—a phenomenon that further obfuscates structural constraints on health, and expands the individual imperatives of healthful choices by placing metaphysical considerations on consumers’ shoulders. We theorize neohealthism through the following themes: the consumption of the Other via cultural exploitation, the question of expertise in spiritual leadership, and the intensified neoliberal imperatives that individualize health and wellness for self and the universe.

Editors' Introduction to Issue 6.4

Extending Sarah Singer and Jordynn Jack’s (2020) definition of illness chronicity as a complex rhetorical process of identification, this essay suggests that the development of specific temporal vocabularies (ways of defining and describing time) is an important part of this process, one that precedes and enables identification. Drawing from underemphasized temporal themes in Kenneth Burke’s work, this essay analyzes a collection of public descriptions of chronic depression to identify implicit patterns of temporal vocabulary development and to consider how these patterns relate to identification. The analysis shows that descriptions of chronic depression consistently utilize what Burke termed “directional” strategies of definition, which center permanence as the essence of the illness experience, obscuring recognition of change. While this definitional strategy enables two potentially ameliorative disidentifications, it comes at the expense of precluding kairos, which requires a dialectically-intact temporal vocabulary featuring terms of both permanence and change.

Fourteen women of color vividly illustrate their experiences of culinary spaces circa 2015 in the zine Women of Color #11: Food and Family History (hereafter WOC11). WOC11 reveals how rituals surrounding food function as vital moments for healing someone’s psyche, soul, and body. Yet, the biomedical framework for health frequently reduces eating to physiological topics like weighing the right amount. By taking us beyond biomedicine, this article examines how food practices promote wellness linked with feelings and the body. I argue that WOC11 illustrates vernacular forms of care by naming violent processes of alienation in Western foodways and commemorating food practices that encourage wellness for the zinesters’ selves, families, and communities. Scholars in rhetoric of health and medicine (RHM), the argument concludes, need to expand where and what is studied by thinking about health as physical, emotional, and spiritual wellness; such topics orient the field toward the lived realities of violence and care.

Inspired by conversations at the 2021 Rhetoric Society of America Institute workshop on Pandemic Rhetoric(s), this dialogue assembles graduate student, early-, mid-career, and established rhetoric of health and medicine (RHM) and critical health communication scholars to discuss a keyword that has structured political, social, and biomedical thinking about COVID-19: un/precedented. In identifying un/precedented as an organizing temporal rhetoric for the pandemic, we interrogate how recurrent appeals to the pandemic’s novelty both allow for and limit our capacities to meet the pandemic’s tremendous exigencies head-on. Leveraging our unique scholarly and community commitments, we theorize how un/precedentedness 1) becomes complicit in government inaction, 2) (re)asserts conceptual and literal borders, 3) justifies state and national public health mandates, and 4) obscures other historical and contemporary pandemics. We conclude by offering possibilities for interdisciplinary and longitudinal research into the far-reaching effects of contagious disease.

Though persistent failure of clinical trials poses a challenge for multiple conditions, traumatic brain injury (TBI) is especially difficult to study because of its heterogeneity, complexity, unpredictable outcomes, and resistance to definition and classification. This article analyzes published discourse among researchers about the failure of two large trials for progesterone as a traumatic brain injury (TBI) treatment. The analysis specifically examines how researchers respond to trial failure and how TBI functions as a diagnostic construct. I draw on theories of kairos and multiple ontologies to argue that, while evidence-based medicine constructs TBI as a coherent entity in order to study it through randomized controlled trials, this entity breaks down in practice into multiple temporalities and spaces that are not sufficiently coordinated.

During the summer of 1962, news media brought the issue of drug regulation to the public’s attention in a pivotal way when broadcasting journalists reported on Sherri Chessen Finkbine’s decision to terminate her pregnancy after taking sleeping pills containing thalidomide in her first trimester. In this analysis, I draw from New York Times and Arizona Republic coverage of Finkbine’s legal case to demonstrate how the media coverage surrounding Finkbine’s story supported through discursive justification the extensive regulation of women’s bodies in subsequent legislative initiatives. I argue that three argumentative warrants dominated the mediated narratives put forward by this coverage to situate women as: (1) inconsistent and hysterical; (2) overtly dependent on others for guidance and support; and (3) incapable of providing concrete cautionary counsel. Ultimately, I argue that these specific, mediated warrants functioned to define and contextualize regulation and regulatory discourse in the context of women’s health in the years to follow, including the U.S. Supreme Court’s ruling overturning Roe v. Wade in the twenty-first century.

Editors' Introduction to vol. 6 issue 3

The included infographic describes P.A.C.K, guidelines that are a starting point for creating public health tweets that better meet the needs of African American users:• Provide inclusive charts;• Avoid poor timing;• Communicate to individuals; and• Know your potential biases.

Drawing from interviews conducted as part of a study of older African Americans with multimorbidity, we argue how various forms of racism work together to shape communication between doctors and patients. By focusing on what patients say about pain, we highlight patient descriptions of their relationships with pain management, their interactions with healthcare providers, and how they navigate understanding their chronic conditions. Our documentation of patient experience with stigmas and biases suggests what is needed for more empathetic and effective communication within the doctor and patient relationship. We conclude by using the interview data to propose addressing racial inequality in health care in the United States through educational reform and training initiatives grounded in rhetorical research.

Women of color are more likely to experience infertility compared to white women. Despite this likelihood, infertility continues to be associated with whiteness. This study examines the historical and modern influences of the hyperfertility narrative, a pervasive master narrative linking race and reproduction. Studying Instagram posts about infertility and race, McCann argues that women of color have had to fight for their very inclusion within infertility identities, illustrating the continued rhetorical salience that dominant narratives of race and reproductive enforce within support-seeking environments like Instagram. Specifically, this study demonstrates how WOCr rhetors counter hyperfertility by co-constructingnew counternarratives that frame experiences of infertility through experiences with race and racism. These counternarratives involve three empowerment strategies: witnessing, visual counterstorying, and attribution. By studying how marginalized rhetors counter hyperfertility narratives, the study illustrates a kind of invitational knowledge-building that occurs within histories of race and reproduction. Overall, this work pushes scholars and practitioners in reproductive care to acknowledge how racial identities, and perhaps personhood itself, is de/valued around and through reproductive abilities.

Introduction to the Special Issue In Living Color: Amplifying Racial Justice Work in RHM

While there have been tremendous advancements in HIV prevention, treatment, research, and care, vast health disparities still exist across race and ethnicity, as Black and Latinx people continue to have disproportionate rates of new HIV cases. Despite this fact, funding toward and implementation of policies that meet the needs of most impacted communities are virtually non-existent. Moreover, meaningful and impactful discussions about HIV have always required analyzing interlocking systems of privilege and oppression. Thus, in 2017, a group of scholars and activists of color developed HIV Racial Justice Now!, a nationwide grassroots coalition dedicated to advancing a racially just framework for the domestic HIV epidemic. In addition to developing The Declaration, a framework that can be used to push for racial liberation, HRJN disrupts traditional notions of HIV rhetoric, racial justice, and public memory by decentering whiteness in the domestic HIV movement.

Radical doulas are often on the frontlines supporting multiply marginalized birthing people. In providing emotional and physical support to people in labor, doulas are uniquely positioned to witness, to respond, to intervene in the obstetric racism and other forms of injustice unfolding in birth settings—an invariably rhetorical process. In this interview, we talk with Stevie Merino—medical anthropologist, full-spectrum doula, and the co-founder/executive director of the Birthworkers of Color Collective in Long Beach, California. Merino discusses how reproductive, racial, and queer justice informs her birthwork. This interview highlights the discursive and material strategies queer birthworkers of color deploy to support multiply marginalized clients, and the ways they navigate and challenge the existing medical system.

Editors' Introduction to 6.1.

This essay examines the persuasive elements of one of the most influential books of the current era in psychiatry: Peter Kramer’s 1993 Listening to Prozac. That book, a text laden with the value of the hyperthymic (optimistic, charismatic, confident)personality, has been praised for illuminating questions of mood and identity, and blamed for ushering in an era of “cosmetic pharmacology”—and for making Prozac an object at the center of promiscuous prescription. The essay revisits depression, Kramer’s signal concern, in a post/pandemic exigence when millions, perhaps billions, of people come to meet the diagnostic criteria for that “disorder.” In many cases, mental-illness diagnosis, as a rhetorical act and a speech act, shifts a problem from social conditions of precarity and inequity, for example, to personal conditions of pathology. How did Kramer participate in making a capacious and biological view of depressed mood so persuasive, and why does it matter that he did?

America’s individualistic culture is reflected in deeply held beliefs about how people should manage their health and their (lack of) money. In this essay, we trace the ideological discourse of individualism at macro and micro levels, explicating how macro-level discourses surrounding finances and health fulfill key functions of individualism: explanatory and evaluative as well as identity and prescriptive. For each function, we illustrate at the micro level how social adherence to discourses of individualism affects people, relationships, and communities. In particular, we argue, failure to live up to individualistic ideals fosters internalized shame and guilt and worsens mental, physical, and financial health. Grounded in critical rhetorical theory and drawing upon critical interpersonal and family communication and health communication approaches, we illustrate how individualistic discourse is circulated and taken up by people, constituting their identities and relationships. We also showcase the benefits of investigating exigent social issues from multidisciplinary vantage points.

In the context of narcotic drug epidemics, racist logics can shape policy deliberation and delimit uptake. While critical public health scholars have situated the U.S. opioid epidemic as demonstrative of such logics, in rhetoric the opioid epidemic has failed to register as an important deliberative context for representational contestation regarding race and racism. Drawing on Jürgen Habermas’ (1985) steering mediums (steurungsmedium) and Michael Omi and Howard Winant’s (2015) racial formation theory, this essay analyzes the U.S. Anti-Drug Abuse Act of 1986 and Purdue Pharma executive J. David Haddox’s testimony before Congress to show the extent to which racial hegemony saturates juridical engagements at the federal level. Where wide-scale opioid use is concerned, this analysis demonstrates that disparate policy outcomes are largely a reflection of structural and representational inequality along racial lines. This essay thus invites scholars of health and medical rhetoric to consider how processes of controversy and medicalization function to preserve racial hegemony.

Since successful healthcare relies heavily on a practitioner’s ability to empathize with the patient, the allied health professions—like nursing and speech therapy—have long considered the possibilities and limitations of a pedagogical practice that centers empathy. In this essay, we analyze two such pedagogies: role playing with simulated patients in nursing and story sharing in a multimodal memoir group with aphasic clients in communicative sciences and disorders (CSD). Comparing theories of empathy in these fields as well as interviews with the future nurses and speech therapists participating in these experiences, we show how students engage in what we call “empathy-in-action” through both reflection and enactment and what rhetorical scholarship can gain from attending to these practices. Ultimately, we argue that putting rhetoric, nursing, and CSD in conversation deepens each field’s understanding of how empathy can be taught and learned.

Review of Inflamed: Deep Medicine and the Anatomy of Injustice. Rupa Marya and Raj Patel, New York: NY: Farrar, Straus and Giroux, 2021. 484 pages. $30.00 hardcover, $20.00 trade paperback, $14.99 e-book.

Review of Bodies in Flux: Scientific Methods for Negotiating Medical Uncertainty. By Christa Teston. Chicago: The University of Chicago Press, 2017. 256 pages. $35.00 paper.

RHM research brings attention to a lack of nuance in much discourse about the corporeal body,a reflection of positivist values that too often bleed into the classroom. These values can be tiedto dominant ideological frameworks for comprehending the world, including consumeristperspectives and biomedical explanations for illness and prescribed interventions. Todiscourage the tendency to gravitate towards polarized thinking, the author suggestsimmersing students in “wicked problems” that defy simplistic understandings and clearsolutions. Through a case study assignment drawing on a continuum of problems associatedwith corporate-funded research on the effects of sugar-sweetened beverages, students grapplewith a host of stakeholders and issues in the process of articulating a negotiated position that,while productive, acknowledges uncertainty.

In this essay I bring together two spaces—street needle exchange and the university classroom—to explore harm reduction as an epistemological model that can be adapted pedagogically in our rhetoric, communications, and composition classes. I first identify capitalism in the classroom as an insistence on mastery and the relentless call to know, acquire, and achieve. I then offer harm reduction, a public health practice that rejects these iterations of capitalism, to instead ask how we might meet students where they are and how we might forego the rewards of telos for the discomfort of process and mess. I’ll argue in this piece that reducing the harms of capitalist-based writing and knowledge requires considered attention to the ways we are lured toward production (what we might even call “deliverables”). I explore the epistemological nodes of harm reduction—its emphasis on temporality and its privileging of process—as methods for teaching writing, rhetoric, and communications while also offering a pedagogical case study along the way.

Rhetoric of health and medicine (RHM) knowledge integrity is explored in the context of preparing RHM students, researchers, and practitioners to be careful curators and communicators of information from the medical literature. More specifically, the goal of this article is to provide a systematic framework for researching and citing claims, or “facts,” from the medical literature with transferrable skills beyond the academy. In this article, this framework is examined through the lens of science communication ethics and writer ethos to guide individuals while navigating between automation of literature databases and human agency. Furthermore, this article explores the proper citation of research claims from different genres that are published in the “medical literature” with attention to conserving the authors’ original voice. Collectively, this framework and discussion builds on prior scholarship on authorship and intellectual property in medicine.

This short article offers examples of how rhetoricians of health and medicine (RHM) can employ user experience (UX) design principles and practices to enhance student learning in courses that focus on scientific, health, and/or medical communication. More specifically, we propose a participatory health communication pedagogy that can help RHM educators leverage UX principles to meaningfully incorporate students’ experiences into the classroom as both content creators and content users. We argue that by framing students as both creators and users, RHM educators can enact classroom practices and approaches that more fully account for diversity and inclusivity, a process that better accounts for “racism and other forms of injustice [that] permeate health and medicine” (Scott, Melonçon & Molloy, 2020, p.vii). Drawing from two RHM courses as case studies, we demonstrate how a participatory health communication pedagogy can help educators become innovative, UX practitioners who center students’ learning experiences as they design content for health and medical contexts.

This essay explores changes to an upper-division writing course Writing for Health Professionals in the context of the Covid-19 pandemic and the events that propelled Black Lives Matter into the media spotlight. Although instructors were required to move courses online with little time to prepare, I describe my efforts to incorporate the topics surrounding the pandemic and racial inequality into the course curriculum. The course consists of a medical ethics unit and a professional dossier; I found that both units became richer and more helpful to students by incorporating the context and kairotic moment in readings, class discussions, weekly forum posts, and major assignment options.

This dialogue works to situate Rhetorics of Reproductive Justice (RRJ) within Rhetorics of Health and Medicine (RHM) to explore how these two areas might enhance and inform one another. Through conversations with eight scholars who see their work as creating connections between RRJ and RHM, and through a series of reflective, interstitial comments, this dialogue examines current and future possibilities for work that bridges RRJ and RHM, and critically links RHM scholarship to social injustices reproductive bodies encounter.

Editors' Introduction to 5.4.

Review Essay of the following RHM Books: Lawrence, Heidi Yoston. (2020). Vaccine rhetorics. Columbus, OH: The Ohio State University Press. pp. 172. Hardcover $99.95.    Pender, Kelly. (2018). Being at genetic risk: Toward a rhetoric of care. University Park, PA: The Pennsylvania State University Press. pp. 184. Hardcover $69.95.     Rowland, Allison L. (2020). Zoetropes and the politics of humanhood. Columbus: OH: The Ohio State University Press. pp. 190. Hardcover $99.95.

The coronavirus pandemic has been widely experienced online, and the experience of COVID-19 vaccines is no exception. This article reports on a case study of social media writing authored by COVID-19 vaccine clinical trial participants as a new and innovative form of vaccine communication. Findings offer three insights about vaccine decision-making and communication: 1) vaccine refusal, confidence, and hesitancy are increasingly informed by individuals’ personal assessments of vulnerability and risk; 2) expressed vaccine hesitancy is characterized by openness to persuasion; and 3) this impressionable vaccine hesitancy can be productively addressed in spaces that bridge lived experience and medical expertise. Building on these insights, this article delineates strategies for meaningful and participatory online communication about vaccination.

Extensive evidence demonstrates that the Centers for Disease Control and Prevention’s multimedia anti-smoking campaign, Tips from Former Smokers, is an effective public health measure. In this essay, I explain the rhetorical appeals utilized in the campaign that contribute to its resonance, arguing that the campaign invokes corporeal anxiety, an emotion that emerges from societal aversion to disability. These appeals to corporeal anxiety operate as enthymemes by relying upon an unstated premise: that disability is negative and ought to be avoided to preserve one’s normalcy. This analysis treats the campaign messages as a form of bodily rhetoric and visual argument, arguing that the campaign deters smoking through graphic bodily imagery and narratives of lost normalcy that conceptualize disability as tragedy or deficit. I conclude that the success of the campaign comes at the expense of perpetuating stigma against people with disabilities.

Abstract: Standardized Patient Programs (SPPs) enlist actors to roleplay the symptoms of various diseases and disorders, and to embody a range of personalities. These simulations are used to help improve the communicative practices and professional competencies of future healthcare workers. Focusing on the use of these programs for medical students and doctors, this article establishes a kairology of the SPP to better understand the shifting terrains of patient representation. A kairological account focuses on “historical moments as rhetorical opportunities” (Segal, 2005, p. 23) and, in the case of medicine, illustrates how “changes in [medical] practice are importantly reciprocal with changes in the terms of practice” (Segal, 2005, p. 22). I trace the SPP through various linguistic iterations to reveal how the shifting language of simulated patienthood reflects different orientations towards medical pedagogy and patient populations at significant junctures in time. I conclude my kairology with an examination of the Indigenous Simulated Patient Program, a 2011 pilot program that has the potential to better represent and serve Indigenous peoples in medical pedagogy and practice.

According to a December 21, 2018, Michigan Attorney General report, at least 105 Michigan State University employees, between 1997 and 2015, had received complaints from women about Dr. Larry Nassar’s inappropriate touching during medical treatment. In 2014, one of these complaints was finally reported to MSU’s Title IX office, triggering an investigation that led to a report that concluded Dr. Larry Nassar’s methods of treatment were “medically appropriate” and cleared him of any wrongdoing. Rhetorical analysis of this report exposes how Nassar benefitted from a rhetorical infrastructure that was designed to offer him institutional protection as an expert in medical techniques that require extensive touching of patients. Such analysis also exposes the specific discursive practices that sustain the rhetorical infrastructures that enable this institutional protection.

Action-oriented research strives to include vulnerable populations’ voices and to ensure reciprocity between academic and non-academic stakeholders to address complex problems. Challenges persist, however, in engaging community members beyond experts and reconciling differences in the timetables of such work. This article proposes an embodied approach to action-oriented research with vulnerable populations that calls attention to the situated, embodied aspects of the smaller moments through which complex problems are lived. By analyzing a case study of a project at a senior center for disadvantaged older adults—with a particular focus on time, place, and bodies—the piece articulates the implications of such an approach for theory, methodology, and practice in both localized contexts and RHM more broadly.

Editors' Intro

Abstract  Guided by normative rhetorical theory, this study utilizes thematic analysis to explore narratives about sterilization consultations posted by childfree patients and medical providers to Reddit. This study explores the multiple meanings of sterilization, the paradoxical dilemmas competing conversational purposes create, and the communicative practices, interpretive lenses, and environmental resources patients and providers employ to manage dilemmas. The analysis reveals that voluntary sterilization inheres task, relational, and identity meanings for both patients and providers, creating paradoxical dilemmas and rendering sterilization consultations additionally challenging to navigate. Patients and providers both accept and confront paradox, adopt cultural and contextual interpretive lenses to evaluate others’ talk, and rely on childfree patient and physician social networks as environmental resources to shift the context in which talk occurs. The conclusion offers theoretical implications for normative rhetorical theory and practical implications, including: illuminating features influencing interactions in which sterilization requests are made and evaluated, and underscoring the multiple meanings that constrain patients and providers during these consultations.

Humira® has been the top selling pharmaceutical since 2014. As a former Humira® user, for the treatment of Crohn’s disease, I explore how we understand the concept and experience of chronicity as it is represented in advertisements for Humira® and manifested in embodied reactions to these advertisements. Through a layered narrative method that combines rhetorical analysis with autoethnography, I analyze 13 Humira® commercials. I argue that Humira® commercials operate through a curative imaginary (Kafer, 2013), which not only assumes viewers desire to be immune-typical but also defines normative orientations to time. This case study reveals how direct-to-consumer pharmaceutical advertising obscures cultural and systemic sources of (dis)ablism, including the ways striving for normalcy is in and of itself an experience of chronicity, and disregards experiences of chronicity that disrupt normalizing boundaries of time.

This persuasion brief addresses medical oncologists and their teams (nurses, physician assistants, and the like) who use chemotherapy to treat cancer patients, and asks them to consider the ways that a post-chemotherapy state is itself a chronic condition, how some patients come to understand their bodies as chronically changed by chemotherapy (almost as if having a new or different disease), how patient education materials describing chemotherapy can better equip patients to face their new reality, and why practitioners should be better trained in post-chemotherapy care.

Alzheimer’s disease (AD), a neurodegenerative disease that progresses along a fluctuating course of changing capacities, affects approximately 5.7 million Americans, an estimate expected to skyrocket as the baby boomer generation ages. Adopting a rhetorical field methods approach I analyze the transcripts of qualitative interviews of 3 patients and 28 caregivers to understand how the chronicity of AD affects informal caregiving strategies as well as the lived experiences of persons with AD. Employing a new materialist framework along with rhetorical enactment theory, I posit chronicity as rhetorical action distributed not only among human and nonhuman agents but also across moments, requiring special attention to time and timing. I argue chronic illness is rhetorically enacted through three material-discursive practices: ontological practices that enact reality, alignment practices that facilitate or disrupt cooperation among entities, and mnemonic practices that enact and outsource memory among AD caregivers. Across all three kinds of practice, a material-discursive sense of kairos and chronos is advanced.

This article considers how scientists and other researchers frame and integrate online patient registry data into their work. In the case of rare chronic conditions, online patient registry data extend the geographic boundaries that limit research involvement and make efficient use of limited federal funding for research. Through a rhetorical analysis of peer-reviewed journal articles, which I evaluate as artifacts, I show how a selection of them seek to recognize patients’ labor through traditional acknowledgements and provide tangible benefits to patient communities. At the same time, the proliferation of online patient registries and lack of publications suggests that patients’ labor is often overlooked and disregarded. This work reveals how online patient data registries change our understanding and approach to researching chronicity. I conclude by offering ethical considerations for rhetoricians who choose to use and publish data from these registries.

Special Issue Editors' Introduction, Rhetoric of Chronicity

Editors' introduction to 5.1

Review of Translanguaging Outside the Academy; Negotiating Rhetoric and Healthcare in the Spanish Caribbean, Rachel Bloom-Pojar, Urbana, Illinois: Conference on College Composition and Communication/National Council of Teachers of English, 2018. 161 pages, $29.99.

Our article uses case studies of two civilian emergency response mHealth apps—PulsePoint and OD Help—to theorize the ways the mobile mapping functionality embedded in these tools, which is integrated with the Google Maps platform, enables yet also constrains users’ agential practices. Using an interface rhetoric approach, we unpack assumptions related to the embodied contexts of use facilitated by this functionality within the unique scenario of civilian emergency response. We argue that interactions between and among humans and these apps’ mapping interfaces involve complex, negotiated, contextually situated enactments, which align with a posthumanist perspective toward agency. At the same time, these interactions may also inadvertently amplify the precarity of vulnerable groups. Better understanding the ways that mobile mapping technologies shape agential enactments, particularly in ways that affect precarious and dispossessed populations, has important implications for the design of mHealth technologies—and the users who rely on them—moving forward.

This article applies the lens of genre to the social media advocacy of three patient-activists—self-identified “zebras” whose rarely diagnosed conditions are frequently comorbid—who, through performing consistent genre moves, and using the capabilities of social networking to translate personal experiences into public discourse, amplify visibility, and normalize their voices as collective advocacy. Ultimately, through networked communication, these patient-activists perform emergent connections between their conditions outside of the traditional legitimization networks of biomedicine with the aim of gaining legitimacy in public and clinical settings.

On March 10, 2019, 60 Minutes reported the development of a potentially life-altering gene therapy for Sickle Cell Disease (SCD). Despite this therapy’s potential for cure, SCD community members’ reactions ranged from skepticism to fear due to the use of deactivated HIV as a vector for transporting the corrected gene into stem cells, thus repairing the faulty gene in SCD. Using a mental models framework, we analyze how 60 Minutes attempted to explain this research and how audiences reacted on social media. Specifically, we show how 60 Minutes’ treatment of given versus new information, as well as the journalists’ failure to account for the specific audiences with the most at stake, led to misunderstandings that contributed to ongoing fear and mistrust of the scientific community. We conclude with recommendations for how journalists should approach accommodating science when that science has particular impacts on minoritized and marginalized groups.

This essay provides an overview of my experiences teaching Rhetoric of Health and Medicine (RHM) courses with an explicit health justice focus. I ground a discussion of pedagogical possibility by reflecting on my emerging course design, which centers reproductive justice—one example of a justice-oriented framework—as a site of learning and inquiry. In describing my course development and delivery, I suggest that a health justice approach to RHM instruction can be timely, contextually relevant, and challenging. Throughout the essay, I offer specific examples for the purposes of replication or adaptation for differently justice-oriented RHM teaching applications.