Keeping Users at the Center: Developing a Multimedia Interface for Informed Consent

Loel Kim University of Memphis ; Amanda J. Young ; Robert A. Neimeyer University of Memphis ; Justin N. Baker St. Jude Children's Research Hospital ; Raymond C. Barfield

Abstract

Viewing “informing” as a process to protect patients and support autonomy, we undertook a user-centered design process to develop online support for informed consent in pediatric Phase I research trials. Challenges included (a) delivering accurate information to people unfamiliar with medical terminology; (b) delivering this information humanely under time constraints and heightened emotions; (c) allowing users control over the information, while ensuring availability of legally required information. We addressed these challenges through analyses of audience, task, and information design.

Journal
Technical Communication Quarterly
Published
2008-06-06
DOI
10.1080/10572250802100451
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