Technical Communication Quarterly Jun 2008

Keeping Users at the Center: Developing a Multimedia Interface for Informed Consent

Loel Kim University of Memphis ; Amanda J. Young ; Robert A. Neimeyer University of Memphis ; Justin N. Baker St. Jude Children's Research Hospital ; Raymond C. Barfield

Abstract

Viewing “informing” as a process to protect patients and support autonomy, we undertook a user-centered design process to develop online support for informed consent in pediatric Phase I research trials. Challenges included (a) delivering accurate information to people unfamiliar with medical terminology; (b) delivering this information humanely under time constraints and heightened emotions; (c) allowing users control over the information, while ensuring availability of legally required information. We addressed these challenges through analyses of audience, task, and information design.

Journal
Technical Communication Quarterly
Published
2008-06-06
DOI
10.1080/10572250802100451
Open Access
Closed

Citation Context

Cited by in this index (12)

  1. Banville et al. (2026)
    How Biometrics Travel: Reimagining Opt-Out Logics
    Journal of Technical Writing and Communication
  2. Fuglsby et al. (2023)
    Regulating Emotions for Social Action: Emotional Intelligence’s Role in TPC
    Technical Communication Quarterly
  3. Sánchez (2020)
    Examining Methectic Technical Communication in an Urban Planning Comic Book
    Technical Communication Quarterly
  4. Saru et al. (2020)
    “Glocalization” of Health Information: Considering Design Factors for Mobile Te…
    Journal of Technical Writing and Communication
  5. Voeller (2019)
    The Digital Sensorium: Considering the Senses in Website Design
    Computers and Composition
Show all 12 →
  1. Novotny et al. (2019)
    Data Our Bodies Tell: Towards Critical Feminist Action in Fertility and Period …
    Technical Communication Quarterly
  2. Reed (2018)
    Building on Bibliography: Toward Useful Categorization of Research in Rhetorics…
    Journal of Technical Writing and Communication
  3. Hannah et al. (2018)
    Mapping the Terrain: Examining the Conditions for Alignment Between the Rhetori…
    Technical Communication Quarterly
  4. Sánchez (2017)
    The Roles of Technical Communication Researchers in Design Scholarship
    Journal of Technical Writing and Communication
  5. Britt et al. (2016)
    The Development and Validation of the eHealth Competency Scale: A Measurement o…
    Technical Communication Quarterly
  6. Wright (2012)
    Redesigning Informed Consent Tools for Specific Research
    Technical Communication Quarterly
  7. Rosinski et al. (2009)
    Strange Bedfellows: Human-Computer Interaction, Interface Design, and Compositi…
    Computers and Composition

Cites in this index (3)

  1. Giles et al. (2005)
    A Syntactic Approach to Readability
    Journal of Technical Writing and Communication
  2. Barton (2001)
    Design in Observational Research on the Discourse of Medicine: Toward Disciplin…
    Journal of Business and Technical Communication
  3. Rowan (1991)
    When Simple Language Fails: Presenting Difficult Science to the Public
    Journal of Technical Writing and Communication
Also cites 42 works outside this index ↓
  1. (1995)
    10.1542/peds.95.2.314
    Pediatrics  ↗
  2. Ames, A. L. Communicating effectively with interaction. Proceedings of the 19th Annual International Conferen…
     ↗
  3. Angiolillo A. L. (2004)
    10.1002/pbc.20010
    Pediatric Blood & Cancer  ↗
  4. Barfield R. C. (2005)
    10.1097/01.mop.0000145718.77939.b1
    Current Opinion in Pediatrics  ↗
  5. Beck C. S. (2004)
    10.1207/s15327027hc1604_5
    Health Communication  ↗
  6. Beck I. L. (1984)
    10.2307/747821
    Reading Research Quarterly  ↗
  7. Ben-Bassat T. (2006)
    10.1145/1165734.1165737
    ACM Transactions on Computer-Human Interaction  ↗
  8. Britto M. T. (2004)
    10.1542/peds.2003-1134-L
    Pediatrics  ↗
  9. Chandler P. (1991)
    10.1207/s1532690xci0804_2
    Cognition and Instruction  ↗
  10. (2003)
    10.1542/peds.111.3.703
    Pediatrics  ↗
  11. De Angeli, A., Sutcliffe, A. and Hartmann, J. Interaction, usability and aesthetics: What influences users' p…
     ↗
  12. Estlin E. J. (2000)
    10.1200/JCO.2000.18.9.1900
    Journal of Clinical Oncology  ↗
  13. Freimuth V. S. (2006)
    10.1207/s15327027hc2002_5
    Health Communication  ↗
  14. Haley W. E. (2003)
    10.1037/0735-7028.34.6.626
    Professional Psychology: Research and Practice  ↗
  15. Hallnäs L. (2002)
    10.1145/513665.513668
    ACM Transactions on Computer-Human Interaction  ↗
  16. Halpern J. (2003)
    10.1086/JCE200314109
    Journal of Clinical Ethics  ↗
  17. Hays T. (1996)
    10.2190/60Y9-BQG9-80HX-UEML
    Journal of Education Computer Research  ↗
  18. Joffe S. (2001)
    10.1093/jnci/93.2.139
    Journal of the National Cancer Institute  ↗
  19. Kodish E. (2003)
    10.1080/08989620300502
    Accountability in Research  ↗
  20. Kodish E. (2004)
    10.1001/jama.291.4.470
    Journal of the American Medical Association  ↗
  21. Lavie T. (2004)
    10.1016/j.ijhcs.2003.09.002
    International Journal of Human-Computer Studies  ↗
  22. Lindgaard G. (2003)
    10.1016/S0953-5438(02)00063-2
    Interacting with Computers  ↗
  23. Mackay, W. Ethics, lies, and videotape. Proceedings of the SIGCHI Conference on Human Factors in Computing Sy…
     ↗
  24. Miller M. (2000)
    10.2307/3527646
    Hastings Center Report  ↗
  25. Neimeyer R. A. (2003)
    10.2190/EP4R-TULM-W52G-L3EX
    Omega  ↗
  26. Neimeyer R. A. (2004)
    10.1080/07481180490432324
    Death Studies  ↗
  27. Nielsen J. (1994)
    10.1145/175276.175282
    Communications of the ACM  ↗
  28. Norman D. (2004)
    Emotional design: Why we love (or hate) everyday things
     ↗
  29. O'Hair D. (2003)
    10.1207/S15327027HC1502_7
    Health Communication  ↗
  30. Rapp D. N. (2005)
    Visualizations in science education
     ↗
  31. Redish J. (2000)
    10.1145/344599.344637
    ACM Journal of Computer Documentation  ↗
  32. Rosenstock I. M. (1988)
    10.1177/109019818801500203
    Health Education Quarterly  ↗
  33. Rust C. (2006)
    10.1162/0747936042311959
    Design Issues  ↗
  34. Schneider C. E. (1998)
    The practice of autonomy: Patients, doctors, and medical decisions
     ↗
  35. Simon C. (2001)
    10.1002/1097-0142(20010801)92:3<691::AID-CNCR1372>3.0.CO;2-4
    Cancer  ↗
  36. Simon C. M. (2004)
    10.1200/JCO.2004.10.034
    Journals of Clinical Oncology  ↗
  37. Thompson T. (2006)
    10.1207/s15327027hc2002_2
    Health Communication  ↗
  38. Tractinsky N. (2006)
    10.1016/j.ijhcs.2006.06.009
    International Journal of Human-Computer Studies  ↗
  39. Wixon, D., Whiteside, J., Good, M. and Jones, S. Building a user-defined interface. Proceedings of CHI ‘83 Hu…
     ↗
  40. Wright P. (2003)
    10.1080/0140511031000091211
    Journal of Audiovisual Media in Medicine  ↗
  41. Young A. J. (2002)
    10.1207/S15327027HC1401_4
    Health Communication  ↗
  42. Young A. J. (2006)
    10.1207/s15327027hc1901_6
    Health Communication  ↗
CrossRef global citation count: 23 View in citation network →